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Outside Agency Resources & Parent Organizations
½ûÂþÌìÌà is not responsible for contents on external sites or servers.
SPED Family Resources
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Adventures Without Limits (AWL)
facilitates inclusive, outdoor adventure for people of all ages and ability levels. AWL supports trips for everyone. They are a 501(c)3 non-profit organization that has dedicated more than 19 years to getting people outdoors to experience the amazing natural environment of the Pacific Northwest.
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Autism Society of Oregon (ASO)
Our Mission: We create connections, empowering everyone in the Autism community with the resources needed to live fully.
Our Vision: Creating a world where everyone in the Autism community is connected to the support they need when they need it. ASO will be Oregon’s leading organization providing resources, education, advocacy and support for Autistic individuals and their families, friends, and supporters.
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Autistic Community Activity Program (ACAP)
strives to create community resources and opportunities which empower young people with Autism Spectrum Disorder (ASD), by providing, through summer-long day camps, life skills training, academic and social skill-building and positive recreational and educational experiences in the community.
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Camp Easter Seals
offers two residential camp locations to Oregon campers. Summer camp sessions provide a safe and fun experience for children and adults living with disabilities. Summer camp creates an environment that emphasizes camper’s abilities and independence, as well as development of leisure and social skills, and an appreciation of the outdoors. Campers make friends, learn about and explore nature, sing songs, gain confidence, and create memories that linger long after camp fires have died down.
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Center on Brain Injury Research and Training
The is a center under the Department of Psychology at the University of Oregon that conducts research and training to improve the lives of children and adults with traumatic brain injury (TBI). CBIRT’s research focuses on developing interventions to improve outcomes related to education, employability, and quality of life. CBIRT's training activities promote the use of best practices among educators and other professionals who serve individuals with TBI.
Partners in these endeavors include individuals with TBI, family members, educators, and other professionals who serve individuals with TBI, hospitals, and research colleagues throughout the United States and beyond.
Research interests include:
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Hospital-to-school re-entry process
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Educational outcomes of students following TBI
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School services for students post-TBI
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Interventions to improve social relationships for students with TBI
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The transition of youth with TBI from school to adult roles, and
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Systematic instruction in assistive technology to improve outcomes and quality of life for adults with TBI.
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Challenger Division of Little League
was established in 1989 as a separate division of Little League to enable boys and girls with physical and mental challenges, ages 4-18, or up to age 22 if still enrolled in school, to enjoy the game of baseball along with the millions of other children who participate in this sport worldwide.
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Columbia Regional Program
The Oregon Department of Education (ODE) establishes state-wide regional programs to equalize the burden of funding special education services for students with low-incidence disabilities across the state. The purpose of regional services is to assist local school districts in the education of special needs students (although primary responsibility for the education of these students remains with the school district(s) located in each region).
provides a continuum of educational services. These services include a consultation to parents, early intervention programs and school-age teams, support through itinerant teaching, physical therapy, assistive technology, augmentative communication, and classrooms for the deaf and hard of hearing.
CRP hires trained, certified staff with current experience and knowledge of trends, research, and technology in each disability area to provide high-level, specialized educational services.
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Community Vision
. Provides services, education, and advocacy
to ensure that people with disabilities direct their own lives.
We envision a world where people with disabilities are included,
accepted, and able to live a life they choose -
Dance Ability International
mission is to encourage the evolution of mixed-abilities dance by cultivating a common ground for creative expression for all people. The mission is accomplished through performance, educational programs, teacher training and workshops. The work of Dance Ability International helps decrease prejudice and misconceptions about diversity in the field of dance, and by extension in society.
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Disabilities Rights Oregon (DRO)
aims to uphold the legal rights of individuals with disabilities and support families and individuals with disabilities by providing information, tools and referrals, promoting awareness of civil rights and representing individuals in cases where legal expertise is needed.
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Easter Seals Warm Water Aquatic Program
with area school districts, as well as private lessons, children of all ages and range of ability come to the center weekly for swimming lessons and recreation. For many of these children, the warmth of the water allows their muscles to relax and provides them with flexibility and a range of motion not possible in the cooler temperatures of other pools. For many young clients, especially those with cerebral palsy, the compression they feel from being in the water aids their circulation, respiratory and digestive functions.
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Family and Community Together (FACT)
aimed at supporting and empowering Oregon families experiencing disability. They offer peer delivered family support, monthly newsletters, parent mentors, trainings and more.
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First Tee of Greater Portland
of The First Tee of Greater Portland is to impact the lives of young people by providing educational programs that build character, instill life-enhancing values and promote healthy choices through the game of golf.
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Freedom Concepts Inc.
Working with medical professionals, therapists, and families, each Freedom Concepts model is thoughtfully designed to accommodate the needs of individuals with disabilities such as Cerebral Palsy, Spina Bifida, Muscular Dystrophy, Angelman Syndrome, Rett Syndrome, and visual impairment. Any bike can be further customized and adjusted to the exact specifications and unique requirements of the rider, ensuring that each Freedom Concepts bike is a perfect fit.Freedom Concepts Inc. has innovated 18 different adaptive tricycle models for riders of all ages and abilities. Each model can be customized with special seating, foot-plates, or head-rests that make riding safe and comfortable for anyone who gets placed on a bike.
The cycle of mobility — it’s more than a tagline. It’s the idea that every one of us at Freedom Concepts is dedicated to. Creating handcrafted products with pride, quality, and ingenuity, with the goal of providing therapy, recreation, and most of all, freedom.
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Go Baby Go! Oregon
is a community-based outreach program that works with families, clinicians, and industries to provide pediatric adaptive equipment to children with disabilities for mobility, participation, and socialization. Go Baby Go supports kids through innovative, cost-effective, and inclusive solutions.
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Morrison's Parents Anonymous? of Oregon
Parents Anonymous offers free, ongoing weekly support groups for parents and their children in the tri-county area, helping parents improve communication and parenting skills, and discipline in non-physical ways. Contact by phone at 503-258-4568.
website
website contact 1-855- 4A PARENT • 1-855-427-2736
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Mount Hood Kiwanis Camp (MHKC)
children and adults with disabilities an opportunity to leave behind their routine lives and taste the freedom of the outdoors - to go beyond limits that they, and others, have set for them. They provide a caring, welcoming environment where campers are challenged to do their best, yet their special and personal needs are met.
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Multnomah County Developmental Disability Services
Multnomah County Developmental Disability Services
½ûÂþÌìÌà is not responsible for contents on external sites or servers.
What is Developmental Disability Services?
is a community developmental disability program contracted by the State of Oregon to provide people with Intellectual and Developmental Disabilities specialized case management services.
Who is Eligible for Disability Services?
A person is considered for eligibility if they are identified through the Oregon Administrative Rules (OARs)Oregon Administrative Rules (OARs) as having an Intellectual Disability or a Developmental Disability.
What is the OAR Definition of Developmental Disabilities?
Anyone who meets the criteria of Intellectual Disability/Developmental Disability (ID/DD) attributable to a neurological disabling condition that requires training or support similar to that required by individuals with ID/DD while having significant adaptive deficits are eligible, when these conditions occurred prior to age 18 for ID/DD or age 22 for a Developmental Disability other than Intellectual Disability.
The table below depicts the OAR definitions of ID/DD as defined in OAR 411-320-0080.
Intellectual Disability
Other Developmental Disabilities
1. Must be determined to be in place by the 18th birthday.
1. Must be determined to be in place by the 22nd birthdate.
2. IQ 69 is cap for clearly defining Intellectual Disability.
2. IQ scores are not used in verifying the presence of a non-intellectual disability developmental.
3. IQ span 70-75 may be eligible as a person with Intellectual Disability if; a significant impairment to adaptive functioning exists that is directly related to issues of intellectual disabilities.
3. Must have either an official medical or clinical diagnosis of the disability, and a significant impairment to adaptive functioning that is directly related to the specific disability.
4. This adaptive impairment cannot be primarily related to any of the following:
· Mental/emotional disorder
· Sensory impairments
· Substance abuse
· Personality disorder
· Learning disability
· ADHD
4. This adaptive impairment cannot be primarily related to any of the following:
· Mental/emotional disorder
· Sensory impairments
· Substance abuse
· Personality disorder
· Learning disability
· ADHD
5. In the state of Oregon, the developmental disability must have its genesis in the brain.
6. The support needs of the person must be similar to that required by individuals with intellectual disability. (e.g. self-care, receptive language, expressive language)
What is the process of accessing DD Services
The table below outlines the referral process to apply for DD Services.
Referral
· Referrals can be made over the phone, via email, via the mail or by others who refer on behalf of someone.
· A person referring on behalf of the family must have the permission of the family prior to referring.
· A referral can be made through Multnomah County 503-988-6258.
An Intake Eligibility Specialist will contact the family.
The Intake Eligibility Specialist will meet the family.
· Do an interview with the family
· Complete the enrollment paperwork
· Obtain Release of Information for pertinent medical and educational records.
If the student is eligible see below:
If student is not eligible see below:
A case-manager is assigned. Their role is to ensure coordination of protective services
· Refer client to services (such as respite card, behavior support, etc.)
· Coordinate access to services
· Support transition through vocational support and collaboration with the schools
· Support jobs and work skills.
You can request a contested case hearing
Guiding Principles
- Providing every opportunity to involve individuals that we serve in decision making processes and respecting the individual's right to make life choices.
- Striving for a healthy and safe environment.
- Providing timely response to customer needs.
- Ensuring culturally sensitive services and supports are provided in the least restrictive setting possible.
- Providing leadership that supports creativity designed to continually improve systems and services.
- Creating, evaluating and maintaining transparent processes.
- Being good stewards of public funds
Contact DD Services
Call 503-988-6258 or click on the following link for the web page.
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National Alliance on Mental Illness of Oregon (NAMI)
NAMI is a nationwide organization that aims to improve the quality of life of individuals living with mental illness and their families by providing education, support and advocacy.
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National AMBUCS
National , Inc. is a nonprofit charitable organization with a diverse membership dedicated to inspiring mobility & independence.
Mission:
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"Inspiring people to conquer challenges related to mobility and independence, through a nationwide network of volunteer chapters, working in partnership with physical, occupational, and speech therapists; by providing , and many forms of community service."
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"To provide adaptive trikes for amazing people... assist in funding customized, adaptive tricycles for children and adults when an off-the-shelf bicycle or tricycle is not adequate."
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Northwest Down Syndrome Association (NWDSA)
NWDSA’s mission is to create and nurture a loving and inclusive community celebrating every person with a disability, including Down syndrome. Find information about upcoming events, play groups, family and community outreach and more on their website.
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Oregon Branch of International Dyslexia Association (ORBIDA)
ORBIDA focuses on increasing the public awareness oh how dyslexia affects both children and adults. The Oregon Branch website provides information about webinars, meetings, newsletters and trainings.
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Oregon Department of Education (ODE)
has a wealth of resources for parents. Including access to several important documents and information:
Procedural Safeguards: The Procedural Safeguards document defines a parent’s special education rights for students in school age services (kindergarten through 21). This link provides access to the document in Chinese, English, Russian, Spanish and Vietnamese.
Diploma Information: This link provides information for parents about the Oregon Diploma changes and how they affect students, including links to information on modified diplomas.
Oregon Standard IEP: This link provides information about the Oregon Standard IEP. Specifically, it provides a 2 part document, where the Part A provides the guidelines for how to complete the Oregon Standard IEP and Part B provides access to the Oregon Standard IEP. The document is available is Chinese, English, Russian, Spanish and Vietnamese. -
Oregon Disability Sports (ODS)
to provide and promote recreational, fitness and competitive opportunities for people with physical disabilities.
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Oregon Special Olympics
offers training and competition opportunities in 14 different Olympic-style sports. There are three sports seasons throughout the year, with statewide competitions and training in winter, summer and fall.
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Oregon Summer Camps Resource Guide
allows you to search for Oregon camps using search criteria (e.g. Special Needs Camps, Academic Camps, etc) in order to find the camp that will best meet your child’s needs.
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Pacific Northwest Wheelchair Tennis Association
of all ages and backgrounds are provided with programming and developmental opportunities throughout the United States. This High Performance Tennis Program includes both a National Team comprised of players currently at the top of the ITF world rankings and a Developmental Team that includes players of any age who have demonstrated potential to be successful at a higher level. USTA sanctioned wheelchair tournaments are held throughout the country including A, B and C divisions as well as professional ITF divisions.
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PHAME Academy
is a non-profit organization providing fine and performing art opportunities to people with special needs.
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Police Disability Accommodation Registry
Registry is voluntary for people with developmental, mental health, or physical disabilities who may have difficulty communicating their needs to an officer because of an acute crisis or a continuing disability. The Disability Accommodation Registry has been a Portland Police Bureau program since 1996.
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Portland Parks Adaptive & Inclusive Recreation (AIR)
offers community-based recreation activities and leisure services specially designed for children, teens, and adults who have a disability and/or special needs. Their services are designed to assist people in developing and using their leisure time in ways that enhance their health, well-being, and independence.
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Portland Pounders Wheelchair Rugby
is an amateur local wheelchair rugby team.
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Shriners
At the , we believe in the power of play! Our quarterly recreational therapy and movements arts program aims to promote an active and healthy lifestyle while increasing the quality of life for our patients through outdoor adventure, adaptive sports, art, music and social engagement. We provide opportunities for our patients to participate in activities such as gymnastics, swimming, rock climbing, art, music, skiing and snowboarding. All activities are adapted to meet each individual need that our patients have.
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Special Education Parent PTA (SEPTAP)
SEPTAP is a network of families, caregivers, educators and community members working together to improve the education and well being of ½ûÂþÌìÌà students with disabilities in their schools, homes and communities. Through monthly meetings, special events and online forums SEPTAP provide their members with opportunities to connect with each another, as well as the school district, and a variety of community resources and supports.
Canotact them at septap.portland@gmail.com
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Swindells Center
Center of Providence Child Center supports parents and caregivers of children who have special needs, developmental delays or disabilities. They provide resources, information and education.
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The National Center on Dispute Resolution in Special Education (CADRE)
encourages the use of mediation and other collaborative strategies to resolve disagreements about special education and early intervention programs. Visit their website for information about trainings, webinars, IDEA and more.
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United Cerebral Palsy of Oregon and SW Washington (UCP)
UCP provides individualized supports, information and advocacy for individuals with cerebral palsy and other disabilities and their families throughout the region.
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Vocational Rehabilitation (VR)
Get help finding the right job
If you have a disability that makes it hard to find or keep a job, Vocational Rehabilitation (VR) may be able to help. We help people with all kinds of disabilities find jobs that match their skills, interests and abilities.
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Wheel to Walk Foundation
The is a non-profit organization that helps children with disabilities, 20 years and younger, obtain medical equipment and/or services not provided by insurance. They purchase items such as therapy tricycles, adaptive strollers, shower chairs, special beds, selective communication devices, gait trainers, speech therapy devices, and wheelchairs. The Wheel to Walk Foundation strongly believes that no child or young adult with special needs should go without items that could improve the quality of their daily lives.
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Winners-On-Wheels (WOW)
scouting type organization for kids who use wheelchairs. It is a International Organization, based out of Fresno, California. The Oregon Circle was Founded in 1991, and currently carries 21 Winners on the roster, with plenty of room for growth! We have been fortunate to have the community support us in providing a meeting place. The Mission is to Empower todays youth in wheelchairs to be all they can be, and to believe in who they are.